On The Blog

The Canoe

I had this dream several months ago that I can’t stop thinking about. It really reflects how I feel about raising a child with Smith-Magenis syndrome (SMS). I think anyone raising a child with special needs or who has taken on the role of full-time caregiver could identify with this metaphor. I will shorten it […]

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Have Courage

I decided to be bold today and take Sienna, my child with special needs and Ben, my 12 month old, to their brother, Sean’s, soccer game. My husband is the coach and we usually miss the games because of Ben’s nap time. I guess most of the boys on Sean’s team have never met Sienna. […]

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